From their initial contact with the NHS, patients leave behind a trail of valuable data about their appointments, treatments, hospital stays, transplant recovery and follow-up appointments. For transplant clinicians and researchers, this data can help tell a story about how patients and their donors genes interact, how hospital services can best support patients and what more we can all do for those needing a stem cell donation.
As the UK’s largest stem cell donor register, Anthony Nolan securely holds information about donors who have given a second chance of life, along with our many potential lifesavers. Information about patient’s stem cell transplants is collected and coordinated by the BSBMTCT Data Registry, who also support the needs of research studies and the NHS.
In 2019, Anthony Nolan and the British Society of Blood And Marrow Transplantation And Cellular Therapy (BSBMTCT) established our Stem Cell Transplant Data Partnership. Together, we are working to understand how we use existing data to learn more about stem cell transplantation while also preparing transplant data systems for new advanced therapies.