We couldn’t do any of our lifesaving work without supporters like you. Whether it’s joining the register, generously giving financial donations, getting behind our campaigns, volunteering your time, or being bold advocates of our work - your support means everything. The information you provide helps us to carry out our lifesaving work, and allows us to let you know about the difference you’re making - which is why we’d love you to opt-in to hear from us.
First things first, we want to let you know what personal information we collect, and how we collect it when you buy an Anthony Nolan product (like something from our online shop) or help us in our work (by joining the register or raising funds). The main things we collect are:
In some cases, where appropriate, we may also collect your date of birth, and some information about your interests and preferences to make sure we’re sending you the most relevant communications. If you sign up to the register, or donate cord blood, we’ll also collect some health information from you and from the samples you provide. You can read more about how we process your sensitive personal data in the How we use and process your information section below.
There are a number of reasons why we might collect information from you. These include:
We will always seek consent from a parent or guardian before collecting information about children. Some of the reasons we collect and manage information about children are for the purposes of running patient appeals, developing patient case studies, organising photo shoots, and judging entries related to children who have been nominated for an Anthony Nolan Supporter Award. Every time we work with a child we seek the parent or guardian’s consent for the specific activity we are carrying out.
Our website is not intended for use by individuals under the age of 16 without the agreement and involvement of a parent or guardian.
Like most websites, we use ‘cookies’ to help us improve how we create, and how you use, our site. Cookies mean that a website will remember you, and can obtain an overall view of visitor habits and volumes to our website. They can make interacting with a website faster and easier, for example filling in your name and address in text fields. To view more information on what cookies we use and how we use them you can review our separate Cookies Policy.
Visiting third party websites
We’ve been signing people up to our stem cell register for over 40 years, and we go to great lengths to keep all your information safe. We invest in the appropriate resources to protect your personal information from loss, misuse, unauthorised access, modification or disclosure. We make sure we manage it in accordance with our legal responsibilities under applicable data protection laws. However, no internet-based site, including email, is 100% secure, so we cannot be held responsible for unauthorised or unintended access that is beyond our control.
After we have collected your information, there are a variety of ways in which we might use it to ensure we give you the best possible service. They include:
Providing services and processing information internally
Managing and improving our relationships with supporters
Responding to any queries or issues
Conducting training and reviews of our service
Meeting our legal obligations
Processing your sensitive personal data
We process some of the sensitive personal data you might provide, (e.g. information about your health, ethnicity and tissue type) where you have given your consent to do so, as set out on applicable forms. This information helps us match potential donors (and cord units) to patients who may have the same or similar profiles. We use predictive statistical techniques (using your data, including personal sensitive data) to decide how to communicate with you in relation to your status as a potential donor.
We want you to know that we will never sell or pass on your personal information to third parties for their own marketing purposes. There may be some third parties that we need to share personal information with in order to help us provide services and products to you and to run our website, including the following:
We use external companies to collect or process personal data on our behalf. However we always carry out comprehensive checks on these companies before we work with them and put a contract in place to set out our requirements, especially in relation to how they manage the personal data they collect or have access to.
Some of our suppliers run their operations outside the European Economic Area where different privacy laws apply. By opting-in you understand and agree to the transfer of your information to these countries and parties. We only make these transfers where we are completely satisfied that adequate levels of protection are in place to protect any information held in the country, or that the service provider acts at all times in compliance with applicable privacy laws.
We may share anonymised data about you with organisations engaged in related research activities to help improve transplant outcomes for our patients, but, as this information is anonymised, these organisations will be unable to identify the information as relating to you.
If you have opted-in to hear from us, we will contact you so we can update you on news about the stem cell register, information about campaigns to get involved with, ways to financially support our lifesaving work, stories from patients, and other news we think you’d be interested in. You can unsubscribe from these communications at any time by clicking the link provided in every message we send you or by contacting us (see Contacting Us section below).
We will, however, still contact you in relation to your status as a potential donor, including to update your details, and about any other services or products you have specifically requested from us.
We will never pass on your information to other companies or charities for their own marketing purposes. We may use third party data tracing services and publicly available sources in order to make sure your information is up to date so we can keep in touch. You might receive this information by letter, over the phone, SMS, email or other means – it’s up to you. Rest assured we’ll always ask for your preference in how you hear from us.
The information you provide will be retained by us in accordance with applicable laws. We will take reasonable steps to destroy or de-identify personal information we hold if it’s no longer needed for the purposes set out above.
However, if you do choose to share your information with us publically (for example, photos or footage on social media), then it’s possible that other people may have copied this information during the time that it was live, and therefore use of it is beyond our control.
We’d also like to note that, if you decide to sign up to the Anthony Nolan stem cell register, you will stay on the register until you are 60 years old, unless you decide to close your record on the register before that time. You can request copies of your personal information that we hold at any time (see What your rights are section below).
We want to make sure you’re in control of how we use and keep your information. You can request copies of your personal information that we hold, and details of how we use it, at any time. If you think anything is inaccurate, then you can ask for it to be corrected or erased. You can request an electronic copy of your personal information to be sent to you, or another organisation.
You also have the right to stop us processing your personal information, and/or withdraw your agreement to us processing it based on ‘consent’, unless we have a legal justification for doing so.
If you have any concerns or complaints as to how we have handled your personal information, please don’t hesitate to get in touch (you can find the details above) and we will endeavour to investigate. You may also lodge a complaint with the UK’s data protection regulator, the ICO, who can be contacted at: www.ico.org.uk/global/contact-us or by writing to the Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF.
Updating this policy
*Us’ or ‘we’ refers to the registered charity Anthony Nolan (no. 803716 in England and Wales/ no. SC038827 in Scotland) and a company limited by guarantee (company no. 02379280) and Anthony Nolan Trading Limited, a limited company (company no. 02511952).
The Royal Free Hospital
2-3 Heathgate Place
75-87 Agincourt Road
**We are registered with the UK Information Commissioner’s Office (ICO) as a data controller under registration number Z3022117 (Anthony Nolan) and Z4877402 (Anthony Nolan Trading Limited