Young male patient with parent and doctor

How we produce health information and the PIF TICK

Anthony Nolan’s health information for patients and families affected by stem cell transplant or CAR T-cell therapy is evidence-based, up-to-date and accessible. This means you can trust our information to be accurate and useful. Hopefully, it can empower you to make sense of your situation and make the best decisions for your future.

What’s on this page?

How does Anthony Nolan make its information accessible? 

Information being ‘accessible’ means that everyone who needs our information and support is able to access, understand and use it.  

For example, our information has to meet the needs of those who may be: 

  • blind or visually impaired 
  • deaf or hard of hearing 
  • neurodivergent 
  • not using English as their first language. 

But how do we meet these needs? 

Information formats

Our information is available as: 

  • online webpages 
  • printed booklets or leaflets 
  • audio, both online or as a CD. 

Not all our information is available in every format. Formats we use are decided after our research and user-testing phases of information production.  

Language translation

We use the GTranslate tool on our website. This tool can translate our website into over 100 different languages.  You can find the tool in the top left of all our webpages.

GTranslate is a fantastic tool but some phrasing cannot be directly translated. We therefore give this disclaimer: Please check with your medical team before acting on any translated information.

Video captions

Some of our information includes video, and these videos will always be captioned. This means you’ll be able to read dialogue as well as non-dialogue (e.g. laughter, applause, music).  

Simple language

We make sure our information is as clear as possible. This means we: 

  • use simple, plain English 
  • use short sentences and paragraphs 
  • explain any jargon or medical terms  
  • use bullet points and subheadings 
  • structure content in a way that’s clear to follow.

Need to request something different?

If you have any questions or feedback about our offer of accessible information, or need to request information in a certain format, please email patientinfo@anthonynolan.org  

What is the PIF TICK?

The PIF TICK is a quality mark for health information across the UK. It’s an accreditation scheme run by the Patient Information Forum (PIF) and one Anthony Nolan is very proud to be a part of. 

Why is the PIF TICK important?

‘Please do not Google it’ is something we're all told when we're given news about our health, or someone else’s health… but it’s likely we’re going to do it anyway.  

So, we need to make sure you know the information we produce about stem cell transplant and CAR T-cell therapy is accurate and useful. 

If you see the PIF TICK on a piece of health information, it means you can trust it to be evidence-based, up-to-date, and of a high standard.  

How does Anthony Nolan create health information?

Our information must meet the following criteria to be awarded the PIF TICK: 

  1. It must be produced following a documented, consistent process. 
  1. Staff must receive ongoing training and support. 
  1. It must address a genuine, clear user need. 
  1. It must be reliable, up-to-date, and evidence-based. 
  1. It must be produced with its intended users. 
  1. It must meet literary, digital, and health literacy needs, and be accessible. 
  1. It must transparently meet legal standards and regulations. 
  1. There must be clear opportunities for people to give feedback on a piece of information. 
  1. It must be promoted in an effective way to reach its intended audience. 
  1. It must be evaluated to measure its impact. 

Our PIF TICK accreditation is reviewed every year, so you can be reassured the information you find from Anthony Nolan is gold standard. 

Do we use AI when creating health information?

We use artificial intelligence (AI) tools to improve readability and to confirm the reading age of our health information.

These are specific editorial tools: Hemingway Editor and Readable to check spelling and grammar, and the NHS Document Readability Tool to confirm the reading age of copy. We aim for an ideal reading age of 9-11 for our health information, with a maximum reading age of 14. We do not use large language model AIs (e.g. ChatGPT) to generate health information.

After reviewing the risks and benefits of using each AI, these four AI programmes have been approved for the specific uses listed above:

No private, sensitive or confidential information is uploaded to AI for review.

Generative AI is not used to produce health information. Human checks of reference sections are required before sign-off and publication of information.

We will not change how we use AI in the production of our information without updating this statement first.

Contact us

If you have any questions or comments about our information, please email: patientinfo@anthonynolan.org

Information published: 28/11/24

Next review due: 28/11/27