Everyone should receive the care and support they need after a stem cell transplant, for as long as necessary and no matter where they live – but evidence shows that this is not always the case.
Our report, ‘A pathway for post-transplant care’, aims to help address this problem by describing the services and support packages that are central to patients’ recovery.
The post-transplant care pathway was developed in collaboration with an Expert Steering Group, consisting of leading healthcare professionals, local NHS representatives and patients.
Dr Fiona Dignan, Consultant Haematologist and Chair of the Expert Steering Group
Ruth Beaman, Patient Representative and Vice-Chair of the Expert Steering Group
Together, the Expert Steering Group and Anthony Nolan recommend that:
At a national level... NHS England should publicly set out the steps it will take to ensure that patients have equal access to services that reflect their needs. Leaders in the Devolved Nations should also use the pathway to support the development of their services.
At a local level... all those involved in planning, paying for and providing post-transplant care should review how the pathway could be used to improve and ensure the sustainability of services in their area.
Anthony Nolan... should publish an action plan by the end of 2019/20 setting out the steps it will take, in collaboration with partners, to support the implementation of the pathway across the UK. This includes ensuring that patients and their families have access to the support they need.
- September 2019 – during the development of the pathway, patients told us they don’t want a timeline attached to their recovery. That’s why Anthony Nolan is moving away from using the ‘100 day’ milestone in our patient information. Find out more by reading these blogs from our Lead Nurse, Hayley Leonard and stem cell transplant patient, George Norton.
- May 2019 – to mark the launch of ‘A pathway for post-transplant care’, Dr Fiona Dignan – Chair of the Expert Steering Group – has written a blog about the development of the pathway and why we all need to work together to make it a reality.
The Expert Steering Group was established in May 2018 and brought together leading healthcare professionals, local NHS representatives and patients to oversee the development of the pathway.
- Dr Fiona Dignan, Consultant Haematologist and Clinical Director for Haematology, Manchester University NHS Foundation Trust (Chair)
- Ruth Beaman, Patient Representative (Vice-Chair)
- Gillian Adams, Lay Board Member, NHS West Leicestershire Clinical Commissioning Group
- Joanna Calder, Patient Representative
- Tom Connolly, former General Manager for Haematology, University College London Hospitals (UCLH) NHS Foundation Trust
- Dr Robert Danby, Consultant Haematologist, Oxford University Hospitals NHS Foundation Trust and Anthony Nolan
- Dr Adam Gassas, Consultant and BMT Director, University Hospitals Bristol NHS Foundation Trust
- Michelle Kenyon, Consultant Nurse (BMT), King’s College Hospital NHS Foundation Trust
- Dr Alex King, Consultant Clinical Psychologist, Imperial College Healthcare NHS Trust
- George Norton, Patient Representative
- Mark Ritson, Patient Representative and Trustee, Anthony Nolan
- Dr Ann Robinson, GP, The Mountfield Surgery and Trustee, Anthony Nolan
If you have any questions or would like to discuss the report in more detail, we’d love to hear from you. Fill in the form below and we’ll get back to you as soon as possible.
If you’re a patient or family member who needs support, you can find out how to get in touch with our dedicated Patient Services team here.