Working after a stem cell transplant may be a big milestone in your recovery. It can be an important part of making you feel ‘normal’ again and a different focus away from the medical world. Some people find going back to work stops them feeling low and boosts their confidence.
Returning to work isn’t always straightforward. You’ll be recovering physically and emotionally from major treatment. You may need to make changes to the way you work and take things gradually. Going back to work isn’t always possible or right for everyone. The good news is that there is practical support and advice that can help.
In this section we will look at the following:
More information and advice is also available in our guide Work and finance: before, during and after a stem cell transplant
‘It was a huge boost when I could get back into the office and deal with people as equals again. The most important thing for me was to get back to having a plan - to know that this week I have this meeting or I'm going to see this person.'
Ian, stem cell transplant recipient. You can read about his story here.
As your recovery progresses you might start to think about what going back to work will be like. This can feel exciting, but also daunting, especially if you’ve been away for a long time.
Keep in touch
Keeping in touch with your employer and work colleagues will help you feel like you’re returning to your old routine. It’s helpful to start doing this as soon as you feel ready to. You could send a monthly email, speak on the phone, or have face-to-face catch ups. Some people ask to have internal newsletters or updates about the workplace so that they can keep in touch with what’s going on. Others pop into work and meet up with colleagues and friends. It's up to you.
It can help to think through what your role involves and what you’re able to do as you start thinking about your return. It’s possible that you won’t be able to do as many hours to start with or as many of your job’s tasks at this early point. This is completely normal. It’s important to do things at your own pace.
You might find certain mental tasks more challenging as you get back into the swing of things. Taking notes, making lists, using a diary, calendar or phone apps could help you keep track of tasks and make you feel more in control. Remember, you are likely to find being back at work physically tiring. Taking regular breaks throughout the day and going for a lunchtime walk can help stretch your legs and re-energise you.
Make a plan
It’s a good idea to sit down with your line manager and someone from HR to set out a ‘return to work’ plan. This will help make the process as smooth as possible for you. It might include talking to an occupational health specialist (either through work or your hospital) for some expert advice on what you will need. You can also get advice from the team at Working Towards Wellbeing (see below for more information on this service). It’s important that the plans are flexible and can be adapted as you recover and get stronger. Your return to work should move at your pace and be sustainable for you in the long term.
Your work colleagues might assume that now you can work again, you are now fully cured. If you are concerned about people’s expectations of you when you return, you could give them our Supporting your friend through a stem cell transplant guide. This will give them a better understanding of what you’ve been through and how they can help you day to day. You could also discuss your concerns about how colleagues’ expectations can be managed when talking about your return with your employer.
‘Enabling people to get back to work is good for their physical and mental health, and it's good for a sense of normality. Work offers people a social support network; the opportunity to interact with colleagues. Work is really so much more than being paid.'
Dr Julie Denning, a Chartered Health Psychologist. You can read about the work she does for Working Towards Wellbeing in our blog.
Your employer should consider making ‘reasonable adjustments’ to your role to support you at work. Many employers won’t have experience of supporting an employee who’s had a stem cell transplant. They may not realise that your recovery continues beyond your return and you may have ongoing medical concerns as a result.
You know yourself and your job better than anyone, so think about what would make it easier. It’s really important to update your employer on a regular basis. If your situation changes, your employer can only react if you tell them what you need.
What counts as ‘reasonable adjustments’ varies and depends on the work you do. Here are some examples of the support they may be able to offer you:
Our Work & stem cell transplants: a guide for employers booklet has been produced to help employers understand your needs and how they can provide support. Pass it on to your line manager or HR department. You can also ask your medical team to write you a fit note. This can help you to claim sick pay but also outlines how your medical condition could affect your ability to work. It’ll say what employers need to consider as part of the return to work planning process.
Macmillan also has a useful guide on reasonable adjustments.
It’s illegal for your employer to discriminate against you or treat you less favourably than others because of your medical situation. All blood cancer and blood disorder patients living in England, Scotland or Wales are protected under the 2010 Equality Act. If you live in Northern Ireland, you are similarly protected by the 1995 Disability Discrimination Act.
If you think you are being treated unfairly, it’s important to take appropriate action straight away. It’s possible that some problems happen due to a misunderstanding and can be resolved by talking it through with your employer. If it’s appropriate, talk to your HR department and refer to your staff handbook for more advice.
If the problem is more serious, you might need the help of an independent body to mediate the situation. If you are a member of an employment union, they may be able to support your case too.
More information is available from the Advisory, Conciliation and Arbitration Service (ACAS).
If you are self-employed, your return to work could cause unique challenges and concerns. Without the potential safety net of sick pay or pension scheme, you may feel forced to return to work earlier than you should to provide an income. It may not even be possible to return because of the work you do. You may experience feelings of loss if you have to give up something that has taken time and effort to build up.
This uncertainty can be very stressful for both you and your family – however, help is available to you. The government offers Access to work grants to people with long term health conditions trying to get back to work. You may also be entitled to other benefits that are detailed in our finance section.
If you’re able to return to your role, it can be helpful to create your own ‘return to work plan’ so that you ease yourself gently into work and have a structure to keep to. If you need some help doing this, you can get advice from Working Towards Wellbeing about how to do this.
Macmillan also has information and advice for self-employed people living with cancer on their website.
After their transplant, some patients reflect and think about doing something new, or make changes in their life. This could affect your financial and family situation, so take your time and discuss your thoughts with family and friends. You can speak to your transplant team about it too. Some things you could think about:
‘I'd never want to go back to working full-time! This job is rewarding, but I used to devote my whole life to it, and after being ill I see that there is more to life. It's not the be-all and end-all anymore. Family is more important to me now, plus going out and trying new things.'
Jemma, who had a stem cell transplant in 2012. You can read her story here.
Anthony Nolan is currently working with a company called Working Towards Wellbeing. Their Work Support Services and Work Focused Health Coaching help people to become more active. They help to manage fatigue and other symptoms so people can stay at work or return to work.
After an initial conversation focusing on what’s important to you and the goals you want to achieve, there will be four sessions that you can access. In these sessions you will discuss how to talk to your employer and plan your return to work, as well as any concerns you have. They will also be able to signpost you to other services that may be of benefit to you.
You can be referred to this service by talking to your CNS or a member of your medical team.
Information published: 13/11/18
Next review due: 13/11/21