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Study Days
Our Study Days invite a range of expert speakers to share the latest best practices on a range of topics, including:
- Psychological support
- Late effects
- Graft versus host disease (GvHD)
- CAR-T and other scientific developments
- Palliative care.
Specialist Study Days are available for:
- Clinical nurse specialists
- Pediatric nurses
- Clinical psychologists
- Allied healthcare professionals.
Anthony Nolan Study Days are accredited by the Royal College of Nursing and will contribute to your Core Professional Development (CPD) points. Networking opportunities to meet others in your field are also built into each day.
Email lead.nurse@anthonynolan.org to register your interest
Be 'adopted' by Anthony Nolan
Apply for grants of up to £1,000 towards education or research and help share best practice by joining our adoption network.
Late Effects Practice Guidelines
The Late Effects Practice Guidelines (LEPG) have been created for transplant and non-transplant healthcare professionals.
- These guidelines have been developed by a working group and advisory group of transplant healthcare professionals, GPs and patient representatives, following research on current practice and need.
- They apply to both autologous and allogeneic stem cell transplants unless otherwise stated.
Cognition
Patient-reported changes in cognition after stem cell transplant (SCT) is common but there is limited understanding by transplant healthcare professionals or research into the management of symptoms.
The LEPG working group acknowledges that the guidelines are limited but see this as a first step to encouraging discussion with patients and documenting interventions.
There are plans for further research into the use of an appropriate cognition tool.
Assessment
- Discuss the potential effects of SCT treatment on cognition as early as possible, ideally pre-transplant.
- Consider using a cognition screening tool for baseline assessment.
- Routinely discuss/re-assess at 6 months, 1 year and annually at a minimum.
Management
- Provide information on the effects of stem cell transplant on cognition and advise on intervention and strategies that will improve symptoms.
- Plan and document the interventions and strategies that will help the improvement and management of cognition.
- Consider the effects of fatigue, mental wellbeing and lifestyle on cognition.
- Consider referral to a cognitive rehabilitation service (if available), occupational therapist or neuropsychologist.
Practical Tools
- Information & strategies - How Stem Cell Transplant Can Affect Your Memory & Cognition is available as a webpage, a PDF to share or print, or as a free booklet
- Video - NHSGGC: Attention & Memory Changes After Cancer Treatment
- Further information - on managing fatigue and mental health after stem cell transplant
Recovery Summaries
What is a recovery summary?
An Anthony Nolan recovery summary can be used to summarise a patient's recovery after transplant.
We recommend that this begins at six months post-transplant and is repeated at one year. It can then be used annually and can be used to follow up late effects of treatment.
As well as assessing physical recovery, a recovery summary will promote a holistic assessment, encouraging conversations around mental wellbeing, relationships, sexual health, finance and work.
If you are completing a recovery summary...
We know that each transplant centre will do things differently, so the recovery summaries can be used as a template.
You can download the recovery summary as a PDF and edit it onscreen. Or you can print it out and complete it by hand.
This recovery summary has been developed using well established international guidelines for caring for post-transplant patients. They have been user tested by patients and peer reviewed by transplant specialists.
- Recovery Summary: 6 Months (editable PDF)
- Recovery Summary: 6 Months (to print)
- Recovery Summary: Annual (editable PDF)
- Recovery Summary: Annual (to print)
Vaccinations*
*available soon
The guidelines will be continuously updates over time. If you have any questions, please email lead.nurse@anthonynolan.org
Contact us
If you have any clinical questions, we can put you in contact with expert nurses, clinical psychologists and extended contacts.