When you first go home and in the early stages of recovery, it’s normal for your emotions to be up and down. You might be tired, still feeling unwell, and it could be the first time you’ve had a chance to stop and think about what’s happened to you.
Everyone’s different, but these are some of the emotions people go through:
‘I still feel low – I should be feeling better.’
‘I’ve still got so many hospital appointments – how will I cope?’
‘My family expect me to be back to normal, but I don’t feel normal!’
The good news is that we have more information on where to get further support and how to look after yourself.
‘There was one period where it started to get on top of me, and I started to get affected by anxiety and depression, having sleepless nights. I discussed this straight away with people.’
Read more about Jamie’s experiences of transplant and recovery in his blog.
In the early days after a stem cell transplant, keeping in touch with people and getting out and about is important, especially if you don’t have a partner or close family. This can be daunting just after a transplant, but taking things step-by-step can help. Read our tips on dealing with infections if you’re worried about that.
‘It’s common to feel anxious about social situations, lots of people deal with it by avoiding them. Instead see if you can go for just half an hour, and leave on a high, when you’re not too tired and things are still going well!’
Jayne, Clinical Psychologist
Download our leaflet Life After Transplant: An Essential Guide to Emotional Wellbeing for more information.