If you think that we’ve missed any key organisations or groups from this list, or the information needs updating, please do let us know via firstname.lastname@example.org
ACLT (Afro-Caribbean Leukaemia Trust)
Promote bone marrow and blood donation. Also provide information about leukaemia, other blood diseases and treatments.
A website initially developed for the patients who attend the transplant service in Leeds; however lots of the information will be useful for patients from other centres.
Aplastic Anaemia Trust
Provides information and support for people with aplastic anaemia and their families. Also runs a buddying scheme.
Bloodwise (previously Leukaemia & Lymphoma Research)
Information about all types of blood cancer, including leukaemia, lymphoma and myeloma.
British Association for Counselling and Psychotherapy
Find out more about counselling and psychotherapy and find an accredited therapist in your area.
The patient information website of Cancer Research UK.
Expert information, advice and support if you’re caring for someone.
Children with cancer
Provides information on childhood cancers, as well as practical support like fun days and holidays for children with cancer.
Children’s Cancer and Leukaemia Group (CCLG)
The national association of healthcare professionals involved in the treatment and care of children and young teenagers with cancer, offering support and information.
Citizens Advice Bureau/ Citizens Advice Scotland
Provide free, confidential, independent advice on a variety of issues including financial, legal, housing and employment.
Offers a range of services for children affected by cancer and their families, including a telephone helpline for emotional support and practical advice.
CML Support (chronic myeloid leukaemia)
Online patient support group for chronic myeloid leukaemia patients, their families, and carers.
Contact a Family
Advice and support for parents of children with health problems or disabilities, including information on benefits and services you are entitled to. They also have local support centres.
Provide guidance and information about Faconi anaemia for patients, families, clinicians and researchers.
Genetic Disorders UK
Support for people affected by a genetic disorders and their families.
Information about your employment and benefit rights.
Complementary therapy for those affected by cancer in the North Staffordshire and Stoke region.
Lets you share in other people's experiences of health and illness. You can watch or listen to videos of the interviews, read about people's experiences and find reliable information about conditions, treatment choices and support.
Information about leukaemia and a 24 hour careline, live chat and one-to-one phone buddy support.
Macmillan Cancer Support
Macmillan cancer support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care.
MDS Patient Support (Myelodysplastic Syndrome)
Information about MDS, lists of support groups and an MDS patient community.
Information about living with myeloma, a free infoline, support groups and discussion forum.
Information on conditions and treatments for a range of illnesses
Supporting families affected by primary immune deficiencies.
Support for families of children with life threatening illnesses.
Recommendations and advice on the use of your data on the central NHS cancer registry.
Teenage Cancer Trust
Support to improve the lives of teenagers and young adults with cancer.
Child Death Helpline
Freephone 0800 282986 or 0808 8006019
A confidential helpline that provides a listening ear and can direct you to provide information about helpful local services.
Child Bereavement UK
Supports families and educates professionals when a baby or child of any age dies or is dying, or when a child is facing bereavement.
Cruse Bereavement Care
If someone you’re close to has died and you need to talk, Cruse offer email, telephone and face-to-face support. They also offer information, publications, and support for children.
Offers support & guidance to bereaved children, families and professionals.
Information published: 12/10/16
Next review due: 12/10/19