Theatre maker and performer Toby Peach had an autologous stem cell transplant to treat Hodgkin Lymphoma when he was 19. Toby tells us how he turned his experience into the one-man show The Eulogy of Toby Peach, sharing his treatment and recovery story with humour and insight with audiences across the UK.
You can find out more about Toby on his website: www.tobypeach.co.uk
00:00:00.480 --> 00:00:04.480
welcome to episode 8 of Anthony Nolan patient services team podcast
00:00:04.660 --> 00:00:11.597
And I'm the patient and family engagement coordinator Anthony Nolan through this we hope to provide you with different
00:00:11.656 --> 00:00:15.360
insights into the experiences of having a stem cell transplant.
00:00:15.680 --> 00:00:21.156
We'll be looking at what life can be like before during and after transplant as well as talking with healthcare
00:00:21.205 --> 00:00:23.080
professionals for advice and guidance.
00:00:23.400 --> 00:00:29.916
We will also hear from patients and family members who will share their personal stories and experiences with you. We hope
00:00:29.970 --> 00:00:32.000
you find this helpful and informative.
00:00:32.580 --> 00:00:41.359
Buy to eat as a creative Theatre maker performer and director at work includes the eulogy of Toby peach which is the story
00:00:41.431 --> 00:00:47.980
of tobit experience of Hodgkin's Lymphoma at the age of 19 and then again at the age of 21.
00:00:48.200 --> 00:00:56.333
Can we had an auto stem cell transplant and shares of experiences of self mortality through humour and honesty 10 years on
00:00:56.400 --> 00:01:04.400
to be now work for the rate of young people who are fat and uses art and Drama to express these poignant experiences and
00:01:04.466 --> 00:01:06.600
insightful and entertaining way.
00:01:06.940 --> 00:01:09.040
Here's a clip of Toby and action.
00:01:09.320 --> 00:01:19.220
What is the fastest sperm 270 days before the 9th of the 18th of December 1988?
00:01:20.040 --> 00:01:27.240
Is the night the 18th is in 9424 to 100?
00:01:28.940 --> 00:01:32.040
88 hours which is 13 million
00:01:32.340 --> 00:01:34.240
00:01:34.440 --> 00:01:35.840
00:01:40.500 --> 00:01:43.600
That time I spent about 180000.
00:01:45.600 --> 00:01:47.800
What's 172 episode?
00:01:47.960 --> 00:01:48.860
Star Trek next
00:01:50.580 --> 00:01:53.280
4000 minutes kissing which
00:01:54.020 --> 00:01:55.120
Not very much.
00:01:55.860 --> 00:01:57.260
It took me today.
00:01:59.200 --> 00:02:01.300
75 to make it to that first
00:02:01.980 --> 00:02:03.080
Play a game of spin the bottle.
00:02:04.720 --> 00:02:06.120
Where I deliver the line.
00:02:06.600 --> 00:02:07.500
00:02:08.120 --> 00:02:09.620
After I finish kissing the girl.
00:02:10.560 --> 00:02:12.860
scouts in 9 years
00:02:13.080 --> 00:02:16.380
405 evenings learning about Notts
00:02:16.780 --> 00:02:17.980
Never got a not bad.
00:02:18.280 --> 00:02:22.780
a mum a dad and my brother Tom who is
00:02:23.240 --> 00:02:24.040
00:02:25.560 --> 00:02:27.960
9800 hours were spent.
00:02:29.460 --> 00:02:32.360
00:02:32.560 --> 00:02:35.360
I dressed up as a bandicoot one, so it's
00:02:35.820 --> 00:02:38.020
9 times by the same girl at school
00:02:40.160 --> 00:02:41.960
the age of 10
00:02:42.380 --> 00:02:43.480
I never told anyone.
00:02:44.240 --> 00:02:49.640
lowest diagnosed from cancer 2102000 minutes ago
00:02:53.680 --> 00:02:57.580
00:03:01.320 --> 00:03:02.220
I'm still here.
00:03:04.440 --> 00:03:05.440
00:03:06.280 --> 00:03:07.080
00:03:07.940 --> 00:03:12.340
Will be chatting today about to experience his work and what he's up to now.
00:03:13.360 --> 00:03:23.414
Hello to thank you for coming onto the it's great to meet you and it's really inspiring inside of you to share your stuff
00:03:23.498 --> 00:03:31.060
having having a stem cell transplant. What brought you do that decision to tell your story.
00:03:31.400 --> 00:03:42.100
So it was maybe 3 years post-treatment and I was trying to understand a little bit more about what happened to me.
00:03:43.960 --> 00:03:49.060
I wrote this very short story actually maybe a I think it was like 5 minutes long.
00:03:50.200 --> 00:03:51.200
00:03:52.300 --> 00:03:57.600
I was thinking a true story is a Battersea Arts Centre and I I wrote that about.
00:03:57.680 --> 00:04:08.652
The science of the stem cell transplant and in doing that and then researching I realised I had no idea what happened and
00:04:08.742 --> 00:04:19.624
then I start doing a little bit more research and I read the emperor of all maladies a biography of cancer in incredible
00:04:19.714 --> 00:04:29.780
credible book and again really just made me aware of going home now. This is a huge thing. I think I've kind of
00:04:30.420 --> 00:04:33.820
Stopped it off a little bit and I've been trying to.
00:04:34.780 --> 00:04:41.880
I'd like to know what what did happen and so looking at it and understanding and a bit and realising.
00:04:42.160 --> 00:04:48.592
What like I've had cancer and I don't know what it is for people who have not had cancer. How are they supposed to know
00:04:48.646 --> 00:04:50.160
what it is and particularly?
00:04:51.020 --> 00:04:54.620
I was really interested in where hope comes from and
00:04:54.760 --> 00:04:58.260
In learning quite a lot about how the signs of cancer.
00:04:58.640 --> 00:05:08.284
Is just you and this idea of cells replicating and the language that was being banned about about how I thought this thing
00:05:08.363 --> 00:05:10.340
and how brave I was just.
00:05:10.460 --> 00:05:11.860
00:05:12.180 --> 00:05:17.080
The Premiership then going well actually I was fighting myself and rice.
00:05:17.700 --> 00:05:22.700
Saying that he was telling me I was doing was actually this rebellion and also.
00:05:22.980 --> 00:05:31.471
interested in going well actually if I didn't save myself because this thing happened to me my cells and replicated and
00:05:31.542 --> 00:05:36.680
then I was in an uncontrollable way actually then he did save me because
00:05:37.340 --> 00:05:41.040
What means that we have hope something?
00:05:42.440 --> 00:05:45.940
Ok, and then you went on to do the eulogy so.
00:05:46.360 --> 00:05:53.560
What means you go down that Avenue right? Yeah, so the eulogy kind of came about because
00:05:54.060 --> 00:06:01.150
This feeling of trying to paint that picture of like that I was I'm I'm a storyteller and I realise that telling stories
00:06:01.210 --> 00:06:08.241
about cancer is incredibly difficult and because so many people have connections to a bit also a lot of the time. We we
00:06:08.300 --> 00:06:14.860
see that word we hear their stories and no I don't want to talk about that. I don't want to talk about that and
00:06:15.660 --> 00:06:23.077
I think it's really important to talk about it. I think it's really important to clean as we go into a world where it's
00:06:23.139 --> 00:06:29.560
one in 2 people directly impacted by it so I was like how do I make how do I make story interesting and
00:06:30.140 --> 00:06:36.291
One of those things were going well actually I need to I need to make something entertaining. I need to make something
00:06:36.343 --> 00:06:42.702
that people are going to sit there and go as I'm talking about something very dark and there are moments of varied moments
00:06:42.754 --> 00:06:44.840
in it but actually the reality of going.
00:06:45.280 --> 00:06:49.580
there's a lot of lightness that comes from the like an experience of cancer and
00:06:51.180 --> 00:06:58.441
If I want people to listen and to have a conversation with an audience about that I have to make something that is going
00:06:58.502 --> 00:07:02.980
to make them feel comfortable uncomfortable at the right points obviously.
00:07:03.700 --> 00:07:11.602
have the moments where audiences are gonna laugh where they're going to engage with it when I'm going to connect with her
00:07:11.667 --> 00:07:16.500
kind of a story that that moves them as well and that's the wonders of and
00:07:17.440 --> 00:07:25.181
turn other art forms as well, but for me I would came from a theatre background and said that was kind of my way into it
00:07:25.246 --> 00:07:25.440
00:07:26.560 --> 00:07:27.260
00:07:27.360 --> 00:07:34.773
Edinburgh Fringe Festival with something I never thought about doing it seems like a long time ago that I did it was like
00:07:34.834 --> 00:07:42.125
for four years ago now something that went up and that was where you did you started and again? I'd never never been up
00:07:42.186 --> 00:07:44.760
there. I've never made a solo show before.
00:07:45.300 --> 00:07:55.981
Cute and the idea was that cancer is unfortunately. It's a terrible one man show when you play all the parts and so this
00:07:56.070 --> 00:08:01.500
premise of what cancer is and that show was looking to clear.
00:08:01.940 --> 00:08:09.955
The reality of the fight for telling me about and how I actually I played two characters in that show myself from one that
00:08:10.020 --> 00:08:13.240
looks incredibly like me and how they're kind of.
00:08:13.440 --> 00:08:21.351
They're like the conflict between them is the reality of my cancer diagnosis is how do you find the humour in at Tilbury
00:08:21.417 --> 00:08:28.340
for some patients? They find it really difficult to talk about. How do you find the humour in this store?
00:08:29.460 --> 00:08:36.760
the humour comes from the honesty and one of the things is never a joke at the expense of
00:08:37.200 --> 00:08:46.893
The the difficult moments as well, it's to look at how we make those difficult moments engaging so there are examples in
00:08:46.974 --> 00:08:56.425
that he there is some stuff about an affair with an IV stands and lots of people have relationships or IV stand had a
00:08:56.506 --> 00:09:06.118
blood cancer any most cancers. I guess and I built the store which was about how easy at my ID stand kind of girlfriend
00:09:06.199 --> 00:09:08.300
and how that relationship.
00:09:08.500 --> 00:09:17.188
And how she was this kind of bad influence on me that she shaved all my hair that we do drugs together and like but the
00:09:17.261 --> 00:09:26.095
reason why that the way to talk about it was to talk about loneliness and Cheryl about how a lot of time. You've spent on
00:09:26.168 --> 00:09:29.600
your own and you think about your mortality and
00:00:00.000 --> 00:00:01.300
hunting these things
00:00:02.320 --> 00:00:09.820
When your life I was 22 when I was kind of in that kind of reality I guess so.
00:00:10.060 --> 00:00:12.460
finding the way that somebody can
00:00:12.760 --> 00:00:19.343
understand what that might be about it's really important because unfortunately people aren't going to sit there and
00:00:19.400 --> 00:00:23.260
listen to me moan about cancer and I wouldn't want them to anyway so
00:00:24.160 --> 00:00:32.106
It's just finding a way to make it accessible. My guess is in the way you do that like your character to the ivy style and
00:00:32.171 --> 00:00:38.360
that's really cool and how do you find your audience response when you sell your story I think.
00:00:39.000 --> 00:00:48.119
Over the years there's been a real sense of understanding an audience wants from a cancer story and it's very difficult to
00:00:48.193 --> 00:00:57.014
anticipate and respond to it a lot of the time as well. There is a certain audience of choosing to come and see you so
00:00:57.088 --> 00:01:01.200
they show about cancer which is why perhaps theatre is.
00:01:01.580 --> 00:01:11.898
Is good and useful appointable also inaccessible in some ways as well because the difficulties in certain people coming to
00:01:11.982 --> 00:01:17.480
choose to see that show it's really difficult when Netflix is so.
00:01:18.580 --> 00:01:27.205
had incredible responses years ago on I've been I am feel very privileged about that understand that where it's coming
00:01:27.278 --> 00:01:34.880
from is from her that place of of facts and a real life and that is the inspiration to make the show and
00:01:35.300 --> 00:01:40.400
And a lot of the time. I find the people of finding moments that they are perhaps either.
00:01:40.560 --> 00:01:48.765
yeah, I had that experience or my friend that might be what they're feeling that yeah, and and then there were moments
00:01:48.834 --> 00:01:51.060
that are relatable to one that's
00:01:51.260 --> 00:01:58.129
That's the thing about cancer experiences that so unique there is no one way of telling it and I'm that's one of the
00:01:58.188 --> 00:02:01.860
important things again about trying to stay true to the story.
00:02:04.840 --> 00:02:11.240
send tell somebody else's story I can use my own as an inspiration to talk about it and
00:02:11.960 --> 00:02:14.060
Particularly, I think talking about.
00:02:14.220 --> 00:02:21.371
Hope is probably the hardest words for fighting cancer because so many people are getting affected by and so many in a
00:02:21.432 --> 00:02:22.220
00:02:23.900 --> 00:02:32.811
One of the things what about being so hope is important in a cancer story because we need to know where it comes from so
00:02:32.885 --> 00:02:41.946
that we can give more people hope in the future and the unity very much looking at the history of of of cancer as well and
00:02:42.020 --> 00:02:50.857
looking at how Sony 72 years ago making just checking that 72 years ago that the father is leukaemia in Boston and that
00:02:50.931 --> 00:02:59.992
was the start of chemotherapy and it I'm really interested in how 72 years ago. I would have no chance there was no answer
00:03:00.066 --> 00:03:08.829
me if I was diagnosed them, am I recite point is my nan's brother he died from a blood cancer and probably before that
00:03:08.903 --> 00:03:11.800
time as well as it's just this igniter.
00:03:12.440 --> 00:03:18.440
If I was diagnosed then no chance and comparing yeah where we've got yeah, and it's the same.
00:03:19.040 --> 00:03:25.994
The paint going this is where I hope has come from from the developments that come over these years this incredible people
00:03:26.051 --> 00:03:30.440
that pull together and how humanity is the thing that actually gives us hope.
00:03:31.420 --> 00:03:32.920
When I'm quite.
00:03:34.200 --> 00:03:41.410
I explore the fact that I don't think I did as much like I'm looking at them who they do the thing that saved my life and
00:03:41.469 --> 00:03:48.620
looking at these things again actually that's that's with hope comes from from the from the research from the wonders of
00:03:48.679 --> 00:03:54.400
the NHS for my treatment and those loved ones around you pull you through those hard moments and
00:03:54.960 --> 00:03:55.960
And it's not to say.
00:03:56.680 --> 00:04:03.368
Let's just stop there Pat herself on the back to acknowledge of going that's where I hope comes from so that keep pushing
00:04:03.423 --> 00:04:09.780
down those roofs that put the funds into these amazing kind of developments and things so that gives more patience.
00:04:10.140 --> 00:04:17.816
Absolutely about that goes and it's not feel very lonely, but then there's the healthcare professionals your family and
00:04:17.880 --> 00:04:25.750
friends, so it's nice to can a tiny bit of a like on that you know through creative works which is amazing so on that note
00:04:25.815 --> 00:04:33.362
it's very evident how creative you are you're very talented different theatres Entertainment channel. So what are you
00:04:33.427 --> 00:04:35.040
working on at the minute?
00:04:35.800 --> 00:04:42.500
There are arranged with the particular. I found as I mentioned earlier.
00:04:43.000 --> 00:04:50.750
She was show that I've been privileged to show two over coming up to 6 hours and people across the world and I'm so so
00:04:50.816 --> 00:04:58.830
fortunate to have to go and do that one of things about how do we make the stories accessible to others and how do we make
00:04:58.896 --> 00:05:06.844
sure that people are finding it something they can pick up because people are getting in and been getting in touch saying
00:05:06.909 --> 00:05:14.857
can I can I have a copy Script can I see a video of it and the difficulty is that as it is a theatre show you can only do
00:05:14.923 --> 00:05:22.871
it in certain kind of moment and there's the at the gate around that so one of the things. I was trying to do was go well
00:05:22.937 --> 00:05:30.819
actually, how can I make sure that others can pick it up and say I'm really interested and have been developing a way of
00:05:30.885 --> 00:05:36.600
making it into a graphic novel and this is through my own experience of going actually.
00:05:37.280 --> 00:05:44.912
I would not read that Script if I was diagnosed now. I would not read The Script the emoji like it's not something. I I
00:05:44.976 --> 00:05:46.580
just think it it doesn't.
00:05:47.080 --> 00:05:54.900
Translate the way that I would like it to it and actually if I want young patients to pick it up, but also people who find
00:05:54.964 --> 00:06:02.591
cancer is something that is quite hard to look at I don't think you're going to pick up a script about cancer, so I was
00:06:02.656 --> 00:06:10.476
really interesting and so what would I pick up and one of the first things I picked up after about 3 years again was a was
00:06:10.540 --> 00:06:18.167
a graphic novel had a tiny little bit about his he had hodgkin's lymphoma and I just was like actually I picked this up
00:06:18.232 --> 00:06:25.539
because it was beautiful perhaps because I thought it was going to be something really heavy and there are so many
00:06:25.603 --> 00:06:31.180
incredible books out there and things and I was just really interesting over. How can I
00:06:31.560 --> 00:06:40.136
Use the unity which has got a lot of scope for these kind of magical worlds that occur and graphic novels a lot more
00:06:40.210 --> 00:06:49.230
perhaps then than a regular book and so yeah, that's the that's one of the next step so that peace is looking at ways that
00:06:49.304 --> 00:06:58.250
we can find that projects so that we can make the whole book and get it into particularly into the units units across the
00:06:58.324 --> 00:06:59.360
UK and making.
00:06:59.580 --> 00:07:04.780
accessible for young people like that's always been one of the things about the ug is that
00:07:05.280 --> 00:07:14.598
Young people engage with it and I know that is something that is very difficult to do for cancer and so I can find a way
00:07:14.676 --> 00:07:23.606
that this graphic novel can keep doing that and reach different audiences who wouldn't engage with something like a
00:07:23.684 --> 00:07:32.925
theatre show then that's what I would love to do that. So there's a lot of benefits to having that are in the different
00:07:33.003 --> 00:07:33.780
00:07:34.560 --> 00:07:44.506
Can we have so many great creative about that? How would someone be able to find out more about you and accessing meet us.
00:07:44.588 --> 00:07:54.535
So you can go on on Google or other search engines are able and I'm just hoping peach fortunately. I seem to be one of the
00:07:54.616 --> 00:08:04.400
only type of features out there particularly talking about cancer. So yeah, so beach.co.uk or I'm on Twitter and like to
00:08:04.482 --> 00:08:14.429
drop me a line if you're fantastic to speak to them about your recovery after stem cell transplant. Yeah, so I was perhaps
00:08:14.510 --> 00:08:16.060
in a state of like.
00:08:16.180 --> 00:08:19.880
Learning how to be well again for a number of months.
00:08:20.040 --> 00:08:29.573
I think and actually I'd say that's the physical side of things over number one's in the mental side of it is a lot longer
00:08:29.651 --> 00:08:31.840
and I'm really keen to talk.
00:08:32.420 --> 00:08:40.760
How the end of the story is not at the end of treatment a lot of your time and they're the eulogy does stop a treatment
00:08:40.830 --> 00:08:49.100
that's that's that narrative it starts and ends with leaving the room and going home and actually one of the important
00:08:49.170 --> 00:08:57.720
things. I've seen afterwards is how much we have to talk about the afterwards and how important it is to tell stories that
00:08:57.790 --> 00:09:06.271
don't just end with treatment. I made another show two years ago, which was called the other side of a hurricane and that
00:09:06.341 --> 00:09:14.821
was another young patient and that was about trying to acknowledge that there are a lot of things that continue Honour of
00:09:14.891 --> 00:09:23.091
invisible impacts as well as visible ones I guess and play again through. I need talking about my own experience of a
00:09:23.161 --> 00:09:29.820
young person who has experienced. They are going well actually there are things about identity.
00:00:00.020 --> 00:00:08.359
This guilt there's like the emotional responses that happen beyond something like cancer at young age because it's such a
00:00:08.428 --> 00:00:16.492
particular that happens in your formative years and I I think that's one of the hardest things to talk about is how I
00:00:16.561 --> 00:00:17.320
00:00:17.620 --> 00:00:26.520
Better now wow and I might have looked well. Maybe a year post-treatment and people go yes, are you at Great fantastic?
00:00:26.800 --> 00:00:34.733
Actually either the transition into to being a healthy person. I guess again or I got still ongoing and I think it will
00:00:34.800 --> 00:00:42.866
always be ongoing in a way that the narrative pastry and doesn't doesn't end in a miraculous way, and how important it is
00:00:42.933 --> 00:00:51.066
to talk about that because there are questions that have been opened up at a young age that you're living with the rest of
00:00:51.133 --> 00:00:59.066
your life and a lot of young people who I speak to you in work with are facing a similar things of how how best to talk
00:00:59.133 --> 00:01:07.200
about the fact that they're still like struggling with anxiety. They're struggling with going well. Who am I now? I'll be
00:01:07.266 --> 00:01:09.800
on treatment and what do I do next so?
00:01:10.360 --> 00:01:17.304
I think it's so important to keep keep these conversations going is that we are finding ways to to talk about those people
00:01:17.361 --> 00:01:24.305
who are coming like who are in Treatment that actually we start having these narratives that paint the picture of actually
00:01:24.362 --> 00:01:31.249
it does go on and the sooner we start talking about that the sooner we make it easier for those people who are having the
00:01:31.306 --> 00:01:32.160
00:01:32.420 --> 00:01:40.852
Yeah, because it's not something that point and then you just forget about it has a huge impact on your life. So you're
00:01:40.923 --> 00:01:49.213
totally right to have those questions and explore those feelings and yeah whatever for their individual. I was really
00:01:49.284 --> 00:01:55.520
should I got discharged. Maybe 18 months ago or something and I wrote a piece about how.
00:01:55.900 --> 00:02:04.036
I felt like it was it was like a break up like this amazing break up but also like how how much I missed my that that
00:02:04.105 --> 00:02:12.451
safety net and people on our website can Healthcare world of how that that kind of cut-off point when you are discharged
00:02:12.520 --> 00:02:20.865
and which is an incredible thing and it really is but it is also something like is checking me I really want that person
00:02:20.935 --> 00:02:29.419
to check my my lumps and bumps I want to know if somebody's looking out for me and again. That's the whole thing is how we
00:02:29.488 --> 00:02:35.400
make people understand that I want you just like really happy that you like finished.
00:02:35.500 --> 00:02:40.500
Like seeing a doctor in your cured. That's me doing the bunny is it in podcast?
00:02:45.460 --> 00:02:54.601
So yes, how to make people understand that has happened that actually then I went to a stage after that happened when I
00:02:54.678 --> 00:03:03.742
was like really difficult to go well now. I'm not having something to me if I do who do I go to your face from feeling
00:03:03.819 --> 00:03:13.191
worried about something ok? Look after myself. I don't have to but usually they would be available if you needed them, but
00:03:13.268 --> 00:03:19.260
I know what you mean. It's a different sort of stage of the the journey mercy.
00:03:20.020 --> 00:03:27.587
Do you find Toby that your audiences are familiar with hodgkin's lymphoma and stem cell transplant lot of the time. I
00:03:27.651 --> 00:03:35.218
think the audiences who are choosing to come to a cancer show up perhaps have got some kind of bleach about it, but I
00:03:35.283 --> 00:03:43.109
don't think a lot of the time the you know what cancer is until perhaps it at first you may be directly or indirectly but
00:03:43.173 --> 00:03:50.805
also if I can use my own example even after having it. I had no idea what it was. I mean. They're so often I described
00:03:50.870 --> 00:03:58.631
that cancer being an account so kind of experience and treatment of cancer is a little bit like being in a hurricane and
00:03:58.695 --> 00:04:06.327
so often like you just kind of Spinning Around you're saying yes to everything and I'll take that I'll have this. I'll
00:04:06.392 --> 00:04:09.820
have that and and then if you want you can throw now.
00:04:10.100 --> 00:04:16.695
The other side then you carry on spinning for quite a long time and you can't get your feet down. I properly and then
00:04:16.751 --> 00:04:21.600
there is a moment you can perhaps put your feet down like a solid stance and suddenly.
00:04:21.880 --> 00:04:28.725
Unless you looking over your shoulder at this wreckage and perhaps not even knowing what I gone on there and that's where
00:04:28.781 --> 00:04:31.780
I decided that. I was really interested to know what.
00:04:31.980 --> 00:04:40.735
Was that what what is hodgkin's lymphoma? What is a stem cell transplant and yeah like I said like no idea really see the
00:04:40.808 --> 00:04:46.380
science of it and how incredible it is I mean I really remember just Desserts
00:04:46.600 --> 00:04:56.070
Really strong memory which is in the eulogy and as we drove quite a lot of money to tell the story was about just coming
00:04:56.149 --> 00:05:05.698
out of collecting my own stem cells and so I had an auto transplant and so we have to go in and have them collected and I
00:05:05.777 --> 00:05:15.326
went in at uclh just up the road and had them taken out the number of hours. You do and then left in that bag which looks
00:05:15.405 --> 00:05:15.800
00:05:15.980 --> 00:05:26.935
Automatic catch up again. It's really like not impressed. I remember at the end of that day being told that they taken out
00:05:27.024 --> 00:05:29.180
9 million stem cells and
00:05:30.280 --> 00:05:37.180
Ok, and then I left and I went across the road to go and have some dinner.
00:05:37.640 --> 00:05:44.540
Sat down there because you're over just leave and I'm being sat down and eating this dinner and going.
00:05:45.540 --> 00:05:48.540
I just taken out 9 million little bits of me.
00:05:48.880 --> 00:05:50.680
I can go home.
00:05:51.300 --> 00:05:59.000
And I was like how have I done this? How do you take out 9 million little bit of somebody and then they can go home and
00:05:59.600 --> 00:06:00.500
play just really
00:06:00.700 --> 00:06:06.900
Play me realise how incredible our bodies are an incredible the treatment was that point.
00:06:07.540 --> 00:06:08.240
00:06:09.180 --> 00:06:16.502
Yeah, it's one of those things are going that is an incredible moment which perhaps I didn't even notice through going
00:06:16.564 --> 00:06:24.010
through it and it's only through reflecting on it and then trying to create some kind of accessible content makes that a
00:06:24.072 --> 00:06:31.518
little bit more. Yeah, open I guess the discussion that we can make you understand what them foamers and watch them cell
00:06:31.580 --> 00:06:39.027
Transplants are and social memory to that and how that meant so much for the time is the next step in your treatment, so
00:06:39.089 --> 00:06:46.535
well, that's really interesting memory question for you. What advice. Would you give when he's going through a stem cell
00:06:46.597 --> 00:06:47.280
00:06:48.320 --> 00:06:52.120
I think the advice I find the
00:06:52.300 --> 00:06:59.387
One of those things the uniqueness of an experience I guess is the difficult thing and acknowledging that whatever is
00:06:59.448 --> 00:07:04.900
whatever you can do to be good for yourself is the important important thing in this time.
00:07:05.900 --> 00:07:14.160
Regardless of whatever can see you you have or how your treatment is going you are the one who can know about what's going
00:07:14.228 --> 00:07:22.285
on for you and your mind and also in your body. I guess so it's about being kind to yourself through a treatment for me
00:07:22.353 --> 00:07:29.937
that was perhaps like making sure that I was looking after myself mentally by a distracting myself from from the
00:07:30.004 --> 00:07:37.926
treatment. I guess or being kind to myself and making sure that I'm buying a cup of coffee that I really want to have
00:07:37.994 --> 00:07:45.713
something like that and it's completely unique to everyone but the important thing is this is your your own unique
00:07:45.781 --> 00:07:47.000
response to it and
00:07:47.680 --> 00:07:54.880
As the process goes on its finding ways that you can make it as and cope with it as best that you can.
00:07:55.860 --> 00:07:57.860
Only you will know where that is I guess.
00:07:58.160 --> 00:08:03.922
Very very good. Bye, then. I think you're right. It's the small things can make a difference of tuning in the yourselves
00:08:03.970 --> 00:08:09.780
and what's important to me today. Maybe as you said that cup of coffee and it's just taking it went by moment in that way
00:08:09.828 --> 00:08:15.542
as well. So that begin with me today to be I know a lot of people benefit from listening to this on your story and what
00:08:15.590 --> 00:08:18.760
other work we'll come up with in the future. So thank you so much.
00:08:20.780 --> 00:08:26.645
Thank you for listening to Anthony Nolan podcast if you find this podcast useful, please share on Facebook Instagram
00:08:26.696 --> 00:08:29.680
Twitter and let us know what other topics you like to hear.
00:08:29.980 --> 00:08:36.945
For more information on stem cell transplant recovery as well as free resources that you can download an order visit our
00:08:37.003 --> 00:08:38.280
website at the moment.
00:08:38.720 --> 00:08:41.220
I take a look at a patient and family pages.
00:08:41.700 --> 00:08:47.900
We also have a fantastic supported platform. That is our patient and family forum or you can connect with other patients
00:08:47.951 --> 00:08:51.000
and family members have also been through the same process.
00:08:51.200 --> 00:08:56.100
Define up to the form, please visit anthonynolan.org form.
00:08:56.560 --> 00:09:03.226
We also have our own Anthony Nolan patient and families Facebook page or you can access our latest posts events and much
00:09:03.282 --> 00:09:03.560
00:09:03.640 --> 00:09:10.785
We also offer a telephone peer support service or you can speak to someone who had a transplant at least two years ago to
00:09:10.844 --> 00:09:17.577
hear more about this order see other ways we can support you and your family you can also email at patient info at
00:09:17.636 --> 00:09:18.640
00:09:18.860 --> 00:09:20.160
the colours on
00:09:20.500 --> 00:09:21.700
00:09:21.880 --> 00:09:22.780