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The family of eleventh-month old baby with a life-threatening illness are urgently appealing for strangers to sign up to the Antony Nolan stem cell register, and potentially save his life.

The charity Anthony Nolan is today announcing proposed changes to its organisational structure in response to the new operating environment and to reduce costs  in response to the coronavirus pandemic and the loss of income the organisation has experienced.  These changes would  enable the organisation to continue to be there for patients now and in the future through support services  and continue its research and lifesaving work matching stem cell donors with people in need of transplants. 

The charity Anthony Nolan is today announcing proposed changes to its organisational structure in response to the new operating environment and to reduce costs  in response to the coronavirus pandemic and the loss of income the organisation has experienced.  These changes would  enable the organisation to continue to be there for patients now and in the future through support services  and continue its research and lifesaving work matching stem cell donors with people in need of transplants. 

‘They give me 16 months to live. I’m not interested in 16 months, I’m not even interested in five years. I’m interested in the five years after that.’

The All-Party Parliamentary Group (APPG) on Stem Cell Transplantation, of which Anthony Nolan is the secretariat, has today (5 August) launched an inquiry seeking to understand how a patient’s background can lead to barriers in accessing treatment and care.

Exploring barriers to accessing treatment and care is more relevant than ever, with the COVID-19 pandemic exposing and amplifying existing health inequalities.

An 18-year-old Health and Social Care student from Shrewsbury is calling on young men from across the UK to join the Anthony Nolan register and give hope to patients in need of lifesaving stem cell transplants.

Last summer Jack was diagnosed with acute lymphoblastic leukaemia (ALL), a rare blood cancer that affects the white blood cells. Jack had been studying Health & Social Care at the time, however needed to receive treatment to cure him.

The Chief Executive of blood cancer charity Anthony Nolan, Henny Braund, has written to the Health Secretary, Matt Hancock, to voice concern about the relaxation of the shielding guidance in England which comes into effect tomorrow (Saturday 1 August).

In the letter she shares concerns raised by patients who have received, and are in need of, stem cell transplants about what the change it means for them and their families.

The full letter:
 

Dear Secretary of State,

Blood cancer charity Anthony Nolan has appointed Professor Antonio Pagliuca as Chief Medical and Scientific Adviser. He replaces Professor Alejandro Madrigal who left the charity in March 2020 following his retirement.

“It is an agonising wait hoping the doctors find a matching donor, you are filled with sheer terror and desperation”

The daughter of a Hampshire man with leukaemia, is calling for more people to sign up as potential stem cell donors, with blood cancer charity Anthony Nolan. She has been told that her dad desperately needs a stem cell transplant, from an unrelated donor, if he is to be cured of his cancer. 

The family of a “energetic” three-year-old from Harrow, diagnosed with a rare genetic disorder, have been left “completely shocked” after being told he is in urgent need of a stem cell donor. Together with blood cancer charity Anthony Nolan, they are launching another urgent plea for more people of South Asian descent to join the stem cell register and give their little boy a fighting chance of finding the best possible donor.