You’ve probably thought a lot about the person you’ve helped. Where are they? How are they feeling? Has the transplant worked?
We can sometimes give you updates on their progress during the first year after the transplant. You may also be able to pass anonymous messages to your recipient for the first two years after the transplant, then have full contact after two years (including swapping names and contact details, and even meeting in person).
However, this isn’t always possible. Sometimes, the recipient wants to stay private. And sometimes hospital rules ban contact. If they’re involved in your donation or your recipient’s transplant, we have to respect their rules.
You may also want to donate and simply leave it at that. Lots of our donors are happy just to know they’ve done something amazing. And that’s no problem at all – there’s no obligation on either side.
In light of recent changes to data protection regulation and along with many other registries, we are reviewing the processes around sharing patient updates.
We understand, however, how important it can feel to know the outcome of your stem cell donation. So we are working to find a solution. Be aware also that some international registries do not provide updates on their recipients.
Alternatively, you could write an anonymous card or letter to your recipient via our Donor Follow Up team. We will then send this to the recipient’s transplant centre or international registry, and your recipient may respond to this.
If this is something you would like to do, please send your card or letter with a covering letter letting us know it’s from you to:
Donor Follow Up
2 Heathgate Place
Before you make a decision about engaging with the person who received your donation, you should know that their transplant may not have gone well, or they may have health problems down the line. This could be upsetting for you.
Whatever the outcome, it’s important to remember that you’ve given someone more time with their family and friends.
To protect you and the recipient – and to make sure neither of you feels any obligation or pressure to contact each other – we have some rules about how and when you can get in touch.
You can send a message to your recipient, but please bear in mind:
• you can only send messages via Anthony Nolan
• your messages should be brief and shouldn’t contain any personal details (for example, your name, where you live, your profession or details of family members)
• if the recipient doesn’t reply to your messages, we won’t send any more until we get a response. This applies whether you contact the recipient or they contact you
• there is no obligation for either side to get in touch in the first place, or reply
• you can’t exchange any photos or personal gifts
You can meet the recipient, or have contact over phone or email. But only if:
• the person who received your donation or their family get in touch first. When we receive a request for direct contact, we’ll get in touch with you to help you decide what you’d like to do.
• the recipient’s transplant centre agrees to this, and the recipient does not need another donation. If you provide a top-up donation in the second year after you first donate, then there will be an additional year of anonymity added from the date of your top-up donation.
• you give Anthony Nolan your written consent before we send on your details
Not all transplant centres or registries allow direct contact, so please do get in touch using the details below if you have any questions.
If you’d like to contact the person you’ve donated to or if you have any questions, just call the Donor Follow-Up team on 0207 424 6568, or email email@example.com