We have a legal obligation under the Data Protection Act (1998) to ensure that all information about you held by us is processed in accordance with the Act. The uses of such information are covered by our notification under the Data Protection Act (1998).
We will not collect information about you except where you specifically and knowingly provide it or give us your consent to obtain it.
Your personal details (eg name, postal and e-mail addresses), as well as sensitive personal information if you are joining our bone marrow register (tissue type, ethnic origin and pertinent medical details), are held on a central database by Anthony Nolan.
We will use such data to administer our relationship with you as a member of the Anthony Nolan Register (if you join the Register) and to keep in touch with you concerning our activities as a fundraising charity, blood stem cell register and scientific research institute. We will not supply your name and addresses to any third party except where a) this is necessary for us to carry out our activities or b) we are required to do so by law.
All sensitive personal information is handled as strictly confidential, and can only be accessed by authorised staff. Any authorised individual working with data held by Anthony Nolan has a legal duty to keep information confidential.
If you join the Register we will assign you a unique donor ID. This will be used for the purposes of providing information anonymously to transplant centres and other registries around the world for the matching and donation process.
You have a right under the Data Protection Act to obtain from us a description of the personal information that we hold on you, and a right to have that information provided to you. Should you wish to know what information we hold on you, or to see it (we may charge a fee for this), please write to our Data Protection Officer at The Anthony Nolan Trust, Royal Free Hospital, London NW3 2QG.